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Kayla
Savvy December 2027

Epilepsy

Kayla, on May 15, 2020 at 2:06 PM Posted in Family and Relationships 0 7
Does anyone know how to explain epilepsy because I have it and my fiancé doesn’t understand what it is

7 Comments

Latest activity by Elaine, on May 15, 2020 at 9:01 PM
  • Kari
    Master May 2020
    Kari ·
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    It's a seizure disorder, and I think it would be simple enough to have your fiance read up about it on WebMD or some other website, or perhaps schedule an appointment where your doctor or another medical professional can explain it to him. Not all epilepsy manifests the same, so I think having a discussion with him about how your epilepsy impacts you would be important.

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  • Belle
    VIP August 1997
    Belle ·
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    I think it is easier to show him per youtube. They have a bunch of medical explanations.
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  • Katharine
    Expert July 2021
    Katharine ·
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    I would second having him come with you to talk with your doctor. Since it can manifest in many ways, that's probably best way to make sure he understands your particular case. Though he should be able to google epilepsy beforehand and educate himself at least a bit.

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  • Cristy
    Master May 2021
    Cristy ·
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    I have it too, and have had to explain it my whole life. The explanation I like best is to say it's like an engine misfiring. When your car's engine misfires, weird things happen, and it doesn't work right.

    Your brain is the engine, and sometimes things don't fire in the right order, or in the right way, which makes the engine do weird things. Like seize up.

    I agree with PPs that this disorder manifests differently for every person. Also, every person's trigger for seizures is different. I have learned enough about it through reading, experience, and recovery (from bad seizures), that I now know how my body is affected, and what my triggers are so I can try to avoid them. This isn't the case for everyone though. I have a friend who has it, but her case is so unpredictable, that she and her doctors are having trouble figuring out what her triggers are. Also medications work differently on different people, so the meds that work for me, may not work for you.

    It's a pretty complex disorder. If FH wants to learn more about it, he should read, and maybe also attend a doctor's appointment with you, so he can ask questions. Good luck!!

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  • Kayla
    Savvy December 2027
    Kayla ·
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    He told me he would come see my doctor next I have to go
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  • Cristy
    Master May 2021
    Cristy ·
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    That's good. I'm glad he's willing to learn about it. It's important that he understands what to do, and what NOT to do in the event of a seizure. It's great to have support!
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  • Elaine
    Dedicated October 2020
    Elaine ·
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    I agree with Kari. Make an appointment with your doctor and bring him along so he understands your condition.

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